Cancer Organizations

American Cancer Society
1-800-ACS-2345 (or 1-866-228-4327 for TTY)
A voluntary organization that offers a variety of services to patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs.

Cancer and Careers
ksweeney@cew.org
Provides a free workbook, educational resources, support and information for cancer patients and survivors, coworkers, managers, CEOs and human resources personnel about cancer patients and survivors working through their treatment and returning to work.

CancerCare
275 7th Avenue
Floor 22
New York, NY  10001
info@cancercare.org
1-800-813-HOPE (4673)
Offers support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are available in person, over the phone, and through the agency’s website.

Cancer Hope Network
2 North Road – Suite A
Chester, NJ 07930
info@cancerhopenetwork.org
877-HOPENET (877-467-3638)
Provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.

CURE: Cancer Updates, Research & Education
1-800-210-CURE (2873)
Provides online education, publications, educational events, and comprehensive list of resources on specific cancers, issues for families, financial help, and integrative therapies.

National Cancer Institute (NCI)
800-4-CANCER (800-422-6237)
A comprehensive site for people wanting to know more about cancer, including prevention, definitions, clinical trial information, recipes, links to cancer centers and more. Resources for patients, families and health care professionals.

National Comprehensive Cancer Network (NCCN)
215-690-0300
A non-profit alliance of the world’s leading cancer centers. The primary goal of all NCCN initiatives is to improve the quality, effectiveness and efficiency of oncology practice. To order patient guidelines call 888-909-NCCN (6226).

The Wellness Community
888-793-WELL (888-793-9355)
Provides free psychological and emotional support to cancer patients and their families. They offer support groups on stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events.


Resources: Caregiver Organizations

Today’s Caregiver
1-800-829-2734
Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers.

Care Pages 
CarePages websites are free blogs, created by patients and families, that connect friends and family during a health challenge.

Family Caregiver Alliance
1-800-445-8106
Offers information, education, services, research and advocacy to support and sustain the work of families nationwide, caring for loved ones with chronic, disabling health conditions.

Lotsa Helping Hands
Provides a simple way for friends, family, colleagues and neighbors to pitch in with meals delivery, rides and other tasks necessary for life to run smoothly during a crisis. It uses a free, private group calendar, specifically designed for organizing helpers.

National Association for Hospital Hospitality Houses
1-800-542-9730
A non-profit corporation serving facilities that provide lodging and other supportive services to patients and their families when confronted with medical emergencies. Each facility assures that a homelike environment is provided to persons who must travel to be with a patient or to receive necessary outpatient care.

National Family Caregivers Association
1-800-896-3650
Educates, supports, and empowers caregivers nationwide. Provides services to all caregivers independent of patient diagnoses, relationships and life stages, to help transform family caregivers’ lives by removing barriers to well being.

There With Care
303-447-CARE (2273)
A non-profit organization providing a range of services for children and families facing critical illness in order to ease the burden of day-to-day obligations during a medical crisis.

Visiting Nurse Association of America
1-617-737-3200
A national, nonprofit association of Visiting Nurse Agencies (VNAs) and home healthcare providers.  The mission is to support, promote and advance the nation’s network of VNAs who provide cost-effective and compassionate home care to vulnerable patients. Services include advocacy, education, collaboration, and provision of products, resources and support to members.

Well Spouse Foundation
1-800-838-0879
A nonprofit membership organization that advocates for, and addresses the needs of caregivers of chronically ill and/or disabled spouses/partners. Offers peer to peer support and education for health care professionals and the general public.


Resources: Complementary Care Organizations

Consortium of Academic Health Centers for Integrative Medicine
612-624-9166
cahcim@umn.edu
An organization of 42 highly esteemed academic medical centers across the US. The mission is to help transform medicine and healthcare through rigorous scientific studies, new models of clinical care, and innovative educational programs that integrate biomedicine, the complexity of human beings, the intrinsic nature of healing and the rich diversity of therapeutic systems. Many of the Consortium’s academic medical centers  offer clinical services.

National Center for Complementary and Alternative Medicine (NCCAM)
888-644-6226
The leading government agency for scientific research on complementary and alternative medicine (CAM). 1 of the 27 institutes and centers that make up the National Institutes of Health (NIH) within the U.S. Department of Health and Human Services. Provides the latest news, research, events and clinical trials in complementary medicine.

Pine Street Foundation
415-455-5878
Website that provides information on evidence-based research on integrative care. Publishes a quarterly newsletter called Avenues.

UCSF Osher Center for Integrative Medicine
415-353-7700
A university-based clinic and research center, whose mission is to transform the way medicine is practiced by conducting research on integrative approaches to health, educating students, health professionals and the community, and treating patients with compassionate care – addressing the physical, psychological, social and spiritual aspects of the patient.


Resources: Hospice Resources

Hospice Education Institute
1-800-331-1620
An independent, not-for-profit organization, serving members of the public and health care professionals with information and education about the facets of caring for the dying and the bereaved.

National Hospice and Palliative Care Organization
1-800-658-8898
A national nonprofit membership organization representing hospice and palliative care programs and professionals. The organization is committed to improving end of life care and expanding access to hospice care with the goal of enhancing quality of life for people dying and their loved ones.


Resources: Medication Assistance Organizations

Drug InfoNet
1-315-671-0801
A website that provides drug and disease information. Provides a Manufacturer Information page to link to pharmaceutical company pages.

National Council on the Aging—BenefitsCheckUp
The National Council on the Aging developed BenefitsCheckUp–a comprehensive Web-based service to screen for benefits programs for seniors with limited income and resources. Benefits include health care, energy/utility assistance, tax relief, prescription drug benefits, food, housing, transportation and more.

NeedyMeds
An on-line organization that provides information on patient-assistance programs designed to help with the cost of medicine and health care.

Pharmaceutical Research and Manufacturers of America (PhRMA)—Innovation Today
202-835-3400
A directory of patient-assistance programs offered by pharmaceutical companies.


Resources: Patient Advocacy

Legal Resource Guide for Cancer Patients
The Guide covers legal issues concerning privacy, informed consent, insurance, clinical trials, employment law, disability, liability, guardianship, estate planning, and end of life decisions. The Guide is intended to be an informative resource upon which cancer patients and their family members and friends can rely to answer legal questions.

National Patient Advocate Foundation
725 15th Street, NW, Tenth Floor
Washington, DC, 20005
1-800-532-5274
action@npaf.org

A national non-profit patient-advocacy organization, for assistance in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels.

Patient Advocate Foundation
700 Thimble Shoals Blvd
Suite 200
Newport News, VA 23606
help@patientadvocate.org
1-800-532-5274
Provides no-fee professional case management to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues.

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